HOW will you help end breast cancer?


The Dr. Susan Love Research Foundation wants to know,

The foundation has done a lot for research, all in the pursuit of a cure for breast cancer. We have occasionally posted information on this blog about research studies they’re currently supporting, and now, we are thrilled to share information about the Health of Women (HOW) Study – a “first-of-its-kind international online study for women and men with and without a history of breast cancer.”

Here’s a bit more information about the HOW Study, straight from the study’s website:

The majority of women who get breast cancer have none of the known clinical risk factors. This means we don’t know what causes breast cancer or how to prevent it.

We will collect information about your health, your job, your diet, and your family history, among other topics that can help us get a better understanding of breast cancer and its potential causes.  Periodically, we will send you questionnaires about anything and everything. All you have to do is fill them out online. It’s that simple. This is a partnership and we need you for the long haul. The more questionnaires you fill out, the more information we will have that can help us have a better understanding of why women get breast cancer.

The HOW Study will track hundreds of thousands of women (and men) over time to learn what causes breast cancer, and how to prevent it.  HOW will also study long-term breast cancer survivors in order to get a better understanding of how they are beating the odds. This is the first time a study of this size and magnitude is collecting data entirely online. We are excited by this approach because it will allow us to ask every question any of us (including you) ever wanted answered. We believe this is the first study that will allow the participants to submit questions they want studied, and we are eager to hear what you want us to do!

Go ahead and sign up online! I signed up two weeks ago and filled out the initial questionnaire. Now, I’m waiting to receive the next questionnaire in my email inbox.

Each new questionnaire will be released in a “Call to Action” email and will address a specific topic, such as reproductive health, cancer history (for those with breast cancer), environmental exposures, and much, much more. Each questionnaire should take about 60-90 minutes to fill out, and we will get a new one every three to four months.

If you have more questions, check out the program’s FAQs or reach out to HOW directly.

The HOW Study is being conducted at the Dr. Susan Love Research Foundation, in collaboration with City of Hope Comprehensive Cancer Center.

Army of Women: Latina women, breast cancer & early menopause


Para leer en español, por favor haga clic aquí.

UPDATE: This study has recruited its required number of participants, and is now closed. (8/30/12)

The Army of Women is recruiting women across the United States to participate a study to better understand why some Latina women who have been diagnosed with cancer are sometimes put into early menopause (el cambio de vida) due to chemotherapy treatments. All participation in the study will be handled over the phone, and participants will be compensated for their time.

The Army of Women works to recruit 1 million healthy women to partner with breast cancer researchers and directly participate in the research that will eradicate breast cancer once and for all!

Participants will have the option of having a professional Spanish translator provided for them, if needed. Women who are a part of the study will be asked to:

  • Complete a consent form and two questionnaires (available in English and Spanish).
  • Complete an interview with the research team, either over the phone or in person at a confidential agreed upon location. Women will be asked several questions regarding their experience with menopause (el cambio de vida) resulting from chemotherapy received as part of breast cancer treatment. The interview will be recorded but kept confidential and will last about an hour.
  • Approximately three months after the first interview, women may be contacted to answer questions regarding their menopause (el cambio de vida) experience over time, to clarify previous discussion, or to review answers from the previous interview. This conversation will take only a few minutes.

To participate, you must match ALL of these MAIN categories:

  • You are a woman over the age of 18
  • You self-identify as Latina/Hispanic
  • You were diagnosed with breast cancer (Stage 1-3 only)
  • You had chemotherapy to treat your breast cancer and completed treatment within the last 10 years (it is OK if you received chemotherapy treatment more than one time)
  • You were still menstruating 3 months before you started chemotherapy
  • You experienced chemotherapy-induced premature menopause (you stopped menstruating) following your chemotherapy treatment
  • You live in the United States

If you match the categories above and want to participate, RSVP hereAfter you RSVP, the researcher will ask you additional questions to be sure that this study is the right fit for you.

Think about participating and passing on this opportunity to your friends! You could be part of a major discovery that will affect every single woman in the United States!

Information on this study drawn from the Army of Women materials (via studies@armyofwomen.org).

Army of Women: Multiple Breast Cancer Cases in African American Families


African American women have higher rates of premenopausal breast cancer than women of European ancestry. They are also more likely to die of breast cancer. The Army of Women asks, “Is it possible that there are certain inherited genetic mutations that may explain why?” A research team at the University at Buffalo thinks the answer is yes. And they need African American women who were diagnosed with breast cancer of any stage, AND their relatives to help them find out.

The Army of Women is recruiting women across the United States to participate a study that will look at why some African American families have multiple cases of breast cancer. All necessary participation in the study will be handled through the mail.

To participate, you must match ALL of these MAIN categories:

  • You are a woman older than 18 years of age
  • You identify as Black/African American
  • You were diagnosed with breast cancer of any stage, including metastatic disease and DCIS. There is no time limit since diagnosis and it is OK if you are currently receiving treatment.
  • You have EITHER:
    • a sister who has never been diagnosed with breast cancer who would also like to participate in the study

    OR:

    • at least one living female blood relative who was diagnosed with breast cancer of any stage (including metastatic disease and DCIS). The relative can be your mother, daughter, sister, grandmother, granddaughter, aunt, niece, or first cousin.
  • You have tested negative for the BRCA 1 and 2 mutations (if known). If you do not know your status, you can still participate in the study.
  • You live in the United States.

If you match the categories above and want to participate, RSVP here. After you RSVP, the researcher will ask you additional questions to be sure that this study is the right fit for you.

Think about participating and passing on this opportunity to your friends! You could be part of a major discovery that will affect every single woman in the United States!

Information on this study drawn from the Army of Women materials (via studies@armyofwomen.org).

Army of Women: Hot & Bothered by Menopause?


Do you experience hot flashes and live in Seattle? Or know someone who does? For decades, when women turned to their doctors for help handling menopausal symptoms, hormone therapy was the recommendation. But there are many women who do not want to use menopausal hormones (estrogen and progestin) because of the studies that have shown they can increase a woman’s risk of developing breast cancer (for more information, please click here). And if you’ve had breast cancer, menopausal hormones aren’t an option. (via studies@armyofwomen.org)

The Army of Women is recruiting women in our area to participate a study that will look at how well yoga, exercise, and omega-3 fatty acids (fish oil) work to ease hot flashes and night sweats.

To participate, you must match ALL of these categories:

  • You are a woman between age 40 and 62
  • You are peri- or postmenopausal
  • You have bothersome hot flashes/night sweats
  • You are able to read, write, and speak English
  • You live near or are willing to travel several times a week for 12 weeks (at your own expense) to Indianapolis, Ind., Oakland, Calif., or Seattle, Wash.
  • You are NOT on an anti-estrogen therapy for treating breast cancer [tamoxifen or another SERM (Selective Estrogen Receptor Modulator) or an aromatase inhibitor]
  • You are NOT currently pregnant or breastfeeding

If you match the categories above and want to participate, RSVP here.

Participation in this study will include the following commitments:

  • You will be contacted by phone to answer questions about your hot flashes, menopausal status, health, and exercise habits.
  • If you meet the main criteria for the study, you will be asked to complete a 2-week screening period that involves completing a screening questionnaire and a daily hot flash diary.
  • If you are eligible and choose to join the study, you will be randomly assigned (like flipping a coin) to one of three groups: a yoga group, an aerobic exercise group, or a usual activity group. You will also be randomly assigned to take either omega-3 supplements or inactive pills (placebo) each day. This phase of the study will last for 12 weeks.

Think about participating and passing on this opportunity to your friends! You could be a part of a major discovery that will affect every single woman in the United States!

-Katie Barnett

Do you work the graveyard shift? Help the Army of Women learn more about your risk of breast cancer!


In an age where everything is open 24/7, there’s a growing number of women and men who now work the graveyard shift accommodating the night owls.  It’s no longer limited to nurses and flight attendants! The clerks at Walmart, the 24-hour drive-thru windows and the customer service telephone operators that we call when our computer breaks or our WiFi goes down are working overnight hours as well. What these night workers may not know is that epidemiological research suggests that working the graveyard shift increases their risk for breast cancer. But the big question remains: Why?

Unfortunately, much of the research on breast cancer has been done on rats and mice! There are certainly some important findings that can come from this type of investigation; however, we have yet to hear of a mouse working the night shift. For this we need to study women!  And if we want to understand the connection between working the night shift and breast cancer we need to study women who work the night shift and compare them to women who work days. 

The Army of Women, a program of the Dr. Susan Love Research Foundation, is currently recruiting for the Shift Work and Breast Cancer Risk Study led by researchers at Virginia Polytechnic Institute and State University.  The research team is studying breast tissue samples from women who have not had breast cancer, who have worked either day or night shifts for at least five consecutive years to better understand how wake/sleep cycle disruptions may increase breast cancer risk (day-shift-workers could even include stay-at-home-mothers; nurses, police women, firefighters, hotel workers, factory workers and anyone burning the midnight oil qualify as night-shift-workers).  Later, the researchers will compare the samples collected from women who have not had breast cancer to breast tissue samples collected from women with breast cancer.

Learn more and sign up for the Shift Work and Breast Cancer Risk Study. This study is a good example of the kind of research we desperately need! For all the fundraising done, we still don’t know the cause of breast cancer. The vast majority of women who get breast cancer have none of the known risk factors. Obviously we are missing something big! So even if you are not a night shift worker, you should consider signing up for the Army of Women. We need to compare women with breast cancer to those who haven’t been diagnosed! We need to explore the potential environmental links as well as the possibility that a virus could be the cause.

The Army of Women initiative, funded through a grant by the Avon Foundation for Women, was launched as a way to help researchers connect directly with women who are interested in participating in breast cancer research studies. Volunteers sign up and get an email alert every time a new study is seeking volunteers (once or twice a month). You get to decide which one you fit and/or are comfortable participating in. Some studies are as simple as an online questionnaire while others involve giving blood, spit or even tissue samples. And if you don’t fit the study, you can pass it on to everyone you know. The Army of Women has amazed the scientific community by their ability to recruit participants from across the country and world, rapidly saving years of effort and lots of money. 

Join more than 354,000 women (and a few good men) who are willing to go the next step in eradicating breast cancer. Learn more about the Shiftwork and Breast Cancer Risk Study and the Army of Women. The Army of Women needs YOU!

Re-published with permission from the Army of Women.

Join the fight! Participate in a breast cancer research study!


The Dr. Susan Love Research Foundation and the Avon Foundation for Women, a global leader in breast cancer research, joined forces to launch the Love/Avon Army of Women. It is their goal to recruit one million healthy women of every age and ethnicity, including breast cancer survivors and women at high-risk for the disease, to partner with breast cancer researchers and directly participate in the research that will eradicate breast cancer once and for all.

The Army of Women is currently recruiting Black/African American women living in the United States who are newly diagnosed with breast cancer for the first time (stage I, II, or III) to participate in a study. This study will look at why there are differences in breast cancer treatment experiences between Black/African American women and White/European American women in the United States – this study is called “Protocol for Narrowing the Gap in Adjuvant Therapy,” or the Gap Study.

African American women are more likely to die of breast cancer than Caucasian women, even though fewer African American women are getting breast cancer each year and screening use has improved. This difference has gotten worse over the past 20 years. This Gap Study was designed to gather the information needed to better understand the differences in breast cancer treatment experiences between Black/African American Women and White/European American Women. The researchers want to know more about how to improve the survival rates of women with breast cancer.

Participants in the Gap Study will be asked to complete a 30-40 minute telephone survey about your health related experiences and to allow your medical records to be reviewed by the doctor. If you are interested in participating in this study or know someone who might be, please visit the Army of Women website. Or, if you think you might be eligible for other studies, please take a look at other current projects.

The Army of Women is dedicated to representing all women in research so that the research results will apply to all women. They encourage all women to get involved. Breast cancer has been around for decades, but it does not have to be our future. We can be the generation that stops breast cancer once and for all by figuring out what causes this disease and how to prevent it! This is YOUR chance to be part of the research that will end breast cancer.

-Katie Barnett