Christina’s Story: “HIV’s New Normal”


On Tuesday, May 28, Seattle Weekly published “HIV’s New Normal,” an article about Christina Rock, a woman living in Seattle and living with HIV.

Here’s an excerpt of Seattle Weekly‘s article:

Christina Rock was 2½ years old when she first heard the word AIDS. She was playing in the sandbox at her Key West, Fla., apartment complex. A little boy was in there with her, surrounded by his toy trucks. Other kids played nearby.

Suddenly a stream of parents appeared, snatching their children away. An older boy hovering nearby, maybe 7 or 8 years old, filled Christina in. “We can’t play with you anymore because you have AIDS,” he said.

She was far too young to know what that meant. Nor had she any idea that her mother, a gaunt heroin user, had just tested positive for the disease, and that word had quickly leaked out at the complex, allowing the obvious implication to be drawn about Christina’s own status.

It was 1986—the dawn of the AIDS era—and the disease seemed both mysterious and unstoppable, spreading at a frightening rate from lover to lover, user to user, mother to child.

Her mother, teary when she picked up Christina up from the playground, didn’t explain. So all the 2½-year-old knew was that she wasn’t supposed to play on the playground anymore. She spent a lot of time indoors.

Over the next few years, her mother would die—although it seemed to Christina more as if the skeletal figure had just disappeared—and she started taking a pill, AZT, that sometimes left a bile-like residue in her mouth when she failed to swallow it.

But not until she was 5 did the word AIDS re-enter her life, again spoken by neighborhood children. Twin girls one day told her she had the disease. “I don’t know what you’re talking about,” Christina replied. The twins suggested that she go home and ask her father why she was taking medicine. So she did.

Her dad was furious. “We never say that word,” he told Christina. “We don’t talk about it. You have a medical condition.”  That became the term he always used: Christina’s “condition.”

Whatever it was, it was serious. She understood that much. Around the same time, he told her that she was not expected to live past age 10.

…Today, Christina, a full-bodied woman with long brown hair, a sunny disposition, and a geeky side that finds an outlet in video games, lives with a long-term boyfriend who is HIV-negative. They have two young children, both of whom are free of the virus.

Click here to read the rest of Christina’s story.

seattleweekly-christina

 

 

World YWCA takes on HIV/AIDS


For the past week, people and organizations from around the world have come to Washington, DC, to participate in the XIX International AIDS Conference – the first International AIDS Conference held in the United States. Among them is World YWCA, based in Geneva, Switzerland. Through their participation in the conference, World YWCA advocates for women’s human rights to be placed at the centre of the global HIV and AIDS response.

A few days ago, World YWCA released a press statement, highlighting the experiences of women around the world who are infected and affected by HIV/AIDS, and setting three priorities for addressing HIV/AIDS’ impact on women and girls:

“Infection rates among young women [around the world] remain unacceptably high, making up 61% of all new infections. Gender based violence continue as a significant driver of infection among women, particularly in conflict and post-conflict countries. Women and girls living with HIV remain with limited access to treatment, as well as comprehensive and quality access to sexual and reproductive health information and services.”

“The World YWCA calls for the affirmation of women’s leadership and the framing of women’s human rights as a significant pillar in sustaining the progress in reducing morbidity and rising HIV and AIDS infection among women. The World YWCA strongly advocates for effective leadership of young women and girls through training and capacity building to enhance their knowledge and decision making capabilities enabling them to claim their rights. This approach calls for increased resources and investment on sexual and reproductive health and rights (SRHR) programmes that will empower women and girls in all their diversities to access reproductive health services, creating opportunities for overcoming stigma and discrimination and achieving positive reproductive health outcomes. In order to turn the tide on women’s HIV infection, the World YWCA draws specific attention to the following priorities:

1. Empower young women with access to comprehensive and age-appropriate sexuality education and services
Knowledge about HIV is the first step to avoiding its transmission, yet many young women are not informed, remain unprotected, vulnerable, and at risk of sexually transmitted infections (STIs) and HIV. Young women participating in some YWCA’s safe space forums have raised concern that HIV remains a social problem. Despite the scientific achievements, factors such as their inability to claim sexual and reproductive health rights or access to services, pervasive violence against women, harmful traditional practices, and limited economic resources and   access to education, remain barriers for claiming legal rights and making informed decisions, leaving a majority of young women vulnerable to infection through unsafe coerced sex, rape and sexual violence. This results in unintended pregnancy, unsafe abortion, reproductive health complications and exposure to STIs and HIV.

2. Provide safe, inclusive and empowering spaces for people living with HIV and affirm the equal dignity of all human beings
Women and young women around the world demand dignity. As stigma continues to drive the epidemic and prevents people from accessing treatment and support, successful interventions must support women and young women to get tested for HIV, know their status, access support structures and enjoy their sexual and reproductive rights, without fear of prejudice or discrimination.

3. Adequate programme resources and universal access to SRHR and HIV treatment care and support services
HIV programmes and policies need to better address the specific realities and needs of women and girls, respect and protect their human rights. HIV services providing essential sexual and reproductive health care remain insufficient. There are continued reports of women living with HIV being pressured, and sometimes forced, not to have children, as a requirement for AIDS treatment, or when they do have children, losing access to health services and having the increased burden of child care without support from their partners, family or community.

“As the world gathers for the XIX International AIDS Conference, the World YWCA calls for effective solutions and approaches that affirm and protect the rights of women. Now is the time to overcome injustices and ensure that AIDS responses improve the lives of women and girls.”

For more information on World YWCA, contact Hendrica Okondo, Global Programme Manager SRHR and HIV, World YWCA.

Present in over 120 countries, in 22,000 communities and with an outreach of 25 million women and girls, the World YWCA movement has over 20 years of experience in community and global interventions on HIV prevention, care and support, grounded through programmes and services on HIV and sexual and reproductive rights in 70 countries.

Are LBTQ women at risk for HIV?


Tonya Rasberry has gotten used to telling her story. As a Peer Advocate for BABES Network-YWCA, it’s her job. She’s gone around to schools and spoken at public events – telling diverse audiences about how she became a woman living with HIV, and what her life is like now.

Last week, Edge magazine published an article about Tonya, highlighting that Tonya was no less at risk for HIV infection, despite the fact she is a lesbian woman of color.

“When Eric and I were together we shared a lot of things,” she continued, “including partners. … I was always attracted to women and of course I wasn’t going to get a complaint out of him when it came to me living a bisexual lifestyle,” she explained. “Not once did I consider the fact that maybe he also had a private life of his own, and no matter what we were doing behind closed doors neither one of us thought we would have HIV/AIDS affect our lives the way it has.”

Many women who have sex with women don’t realize that they are also at risk for HIV and other sexually transmitted infections, according to Kim Chronister, M.A., a therapist at AIDS Services Foundation. “According to my research, HIV can potentially be transmitted by exposure of the mucous membrane (i.e., the mouth) to vaginal secretions,” she said. “Also, shared penetrative toys may be a means for transmission of infected vaginal secretions, according to the CDC. In my therapeutic work with women who have sex with women, simple steps that these women can take to lower their risks of being infected may seem obvious, but unfortunately are rarely taken.”

Tonya calls for dialogue among communities of women to address the risk of HIV for LBTQ women: “I believe that just having the conversation about HIV/AIDS in our [lesbian] community is unbelievably crucial, because as long as a sexually active person is talking about those sensitive subjects it will help us alleviate some of the stigma that surrounds this topic.”

To learn more about LBTQ health resources in King and Snohomish counties, visit Public Health – Seattle & King County and Sno GLOBE Equity Alliance’s websites, and the YWCA’s LBTQ Health Blog. And on June 23rd, the YWCA’s Women’s Health Outreach program is hosting their 14th Annual Rainbow Health Fair, where there will be acupuncture, massage, energy healing, Zumba, stretching with Tamara the Trapeze Lady, HIV testing, cholesterol checks, naturopathic consultation, coming out services, mental health education, and a wonderful laughter session! Hope you can make it!

The YWCA Stands Against Racism


At YWCA locations across the United States, YWCA employees, clients, and community members have come together to take a Stand Against Racism. Stand Against Racism is a movement of the YWCA that aims to eliminate racism by raising awareness through annual events. Here, the YWCA and community partners, including the Pride Foundation and The Arc of King County have held over 40 events – just in the city of Seattle!

The YWCA’s Health Access Department participated in a few different events held at our YWCA Opportunity Place and Seneca locations.

Donmee and Julie with YWCA Health Access' Ariana, Ingrid, Devin & Emelia.

Today, I tagged along with Health Access Associate Director Ariana Cantú, Women’s Health Outreach Program Manager Ingrid Berkhout, Health Care Access Advocate Devin Seman, and Healthy Birth Outcomes Outreach Specialist Emelia Udd (seen above) to a slam poetry session at the YWCA Angeline’s Center for Women before attending a panel discussion on racial disproportionality in the criminal justice system. Along with the women of Angeline’s, we heard from four extraordinary, local African American poets. It was incredibly powerful to hear from these four writers and to explore issues springing from racism through the art of poetry.

After leaving Angeline’s, the five of us went to listen to the Disproportionality in the Criminal Justice System and the Impact of Permanent Punishment panel. It was moderated by the Honorable Richard A. Jones, and the panel speakers were Council Member Bruce Harrell, the Honorable Judith Hightower, Mona H. Bailey of the University of Washington’s Center for Educational Renewal, Rosa Melendez of the US Department of Justice – Community Relations Service, and Jennifer Shaw of the American Civil Liberties Union of Washington State.

Panel on Disproportionality in the Criminal Justice System and the Impact of Permanent Punishment at the YWCA Opportunity Place

Also in attendance was a group of 8th grade students from Seattle Girls’ School. Their presence highlighted and framed much of the conversation. Mona H. Bailey declared, “Education, education, education can close the prison pipeline. . . . Progress happens because people take action . . . and sustain it. . . . Let’s redirect the pipeline to productive citizenship.” Judge Hightower made an appeal for all us to systematize anti-racism work – beyond Stand Against Racism Day. In this spirit, Council Member Harrell offered the Seattle Girls’ School students some advice: “Have good friends who look differently than you. And then join an orgnization doing this kind of [anti-racist and social justice] work. And get out of your comfort zone.” Rosa Melendez offered: “If you’re a leader in your school, stand up for what’s right. . . . Treat others the way you want to be treated.”

What I walked away from this panel discussion with was the impact that policies have on different populations – whether intended or unintended. As Mona H. Bailey said, “Policies and procedures [may] appear neutral, but . . . in reality have disparate outcomes.” There is a lot of work for us to do, as individuals, organizations, communities, cities, states, regions, and as a nation. The first place I’ll start is to be in relationship with others who “look differently than” me and to push myself to have conversations about and around race, that may feel awkward and uncomfortable at first. My hope is that through these relationships, I’ll hold myself accountable and be held accountable by others – so that the unintended consequences of my actions are less and the positive impact I’m able to make is greater.

Living Positive: What is HIV’s impact on women?


African American Reach & Teach Health Ministry (AARTH) is holding their 4th Annual HIV/AIDS Conference for Health Professionals today just south of Seattle. As partners in the community and HIV/AIDS service field, BABES Network-YWCA and a few of our friends are in attendance – including Samantha Tripoli, YWCA/AmeriCorps Health and Volunteer Coordinator.

Here are a few tidbits of information that Samantha has already picked up at the conference today.

To find out more about AARTH and today’s conference, visit their website and follow Samantha on Twitter.

Breastfeeding in Seattle: “Would you eat your lunch in a public restroom?”


This week, the Seattle City Council unanimously approved legislation that protects breastfeeding mothers in Seattle from discrimination. Also this week, The Stranger published an article on this legislative victory that advocates have been pushing for – for over 9 months.

The new ordinance, which will likely take effect in May, will allow mothers to lodge discrimination complaints with the Seattle Office for Civil Rights, which will then investigate the alleged discriminatory businesses and collect statements from the mothers and witnesses. If the city finds a violation, it could impose fines of $750 or more, consistent with any other city discrimination charge (such as discrimination based on gender, race, or sexual orientation), and require that a business complete sensitivity training. In addition, a mother could seek claims of up to $10,000 in Seattle Municipal Court.

Leticia Brooks, one of the women advocating for this legislation (and quoted in The Stranger‘s article) shared her story at a Seattle City Council’s civil rights committee meeting last week. After having been forced to feed her child in a public restroom in the past, Ms. Brooks asked the committee, “Who wants to feed their child in a bathroom stall? … Would you eat your lunch in a public restroom?” (italics are mine). Local breastfeeding advocates – mothers, nutritionists, and doctors – have promoted the legal protection of women breastfeeding in public because, despite state-wide protection, women in Seattle continue to be discriminated against, stigmatized, and humiliated by employers, in restaurants, and by perfect strangers. These advocates argued their case by sharing that:

…nursing lowers child obesity rates, infection rates, and chronic diseases, while improving a mother’s mental and physical health (lowering breast- and ovarian-cancer risks, for example). They also pointed out that breast-feeding has been linked with reducing infant mortality rates.

Committee chair Bruce Harrell is the sponsor of this legislation. In the words of The Stranger‘s Cienna Madrid, Harrell “dismissed scattered opposition from sexed-up residents who squawked about the salaciousness of seeing a woman’s bare breast, saying simply, ‘This is a civil rights issue.'” To read the law itself, or to contact Seattle’s Office for Civil Rights with questions or to file a complaint, please visit their website.

Breastfeeding in Public


It has been proven that breastfeeding is healthy for mom, healthy for baby. Women who have breastfed their children have a lower risk for breast cancer, and breastfed children are at a lower risk of SIDS and have stronger immune systems as they grow.

Breastfeeding has become a protected public act in Washington state, and in 44 other states across the country. Women have legal protection that allow them to breastfeed in public or private spaces. In 2009, Governor Chris Gregoire signed HB1596 – a breastfeeding civil rights bill into law, amending “the state anti-discrimination statutes RCW 49.60.030 and 2007 c 187 s 3 to add the following civil right: (g) the right of a mother to breastfeed her child in any place of public resort, accommodation, assemblage, or amusement. In simple terms, this means a public place such as a park, fairground, etc. It does not provide any rights in relation to pumping or nursing at work.” But many women still feel pressure to hide their breastfeeding or when they pump breast milk, are called out in public, or don’t receive the necessary privacy and break-time to pump at work.

In the mid-1950s, only 1 in 5 babies in the U.S. ever latched their mother’s breast, but that number has climbed steadily since. Yet at six months, only 15 percent of newborns in 2011 were fed only breast milk.

The research supporting the health benefits of breastfeeding is clear. But stigma and discrimination against women breastfeeding in public still exists, and impacts a woman’s ability to continue breastfeeding her child if she returns to work, or her comfort in breastfeeding her child when they are out and about in the community.

So Seattle City Councilman Bruce Harrell, on behalf of the Seattle Women’s Commission, is trying to get Seattle to pass its own bill. If it becomes law, anyone who tells a nursing mother to button up or get out may have to pay fines in the thousands of dollars.

Read more about health and breastfeeding disparities in the Puget Sound Region, and to learn about what local nursing moms are doing to advocate for their right to breastfeed in public.

National Women & Girls HIV/AIDS Awareness Day. “Be greater than this disease.”


Greater Than AIDS highlights African American women in film, TV, and music industries in order to mark National Women & Girls HIV/AIDS Awareness Day. Hear what these women have to say about what we can do in the face of HIV/AIDS.

“Make every moment a deciding moment to be greater than this disease.”

Perpetuating Stigma: the criminalization of women living with HIV


Tonight, public television channels around the country will air In the Life‘s “Perpetuating Stigma,” a special report on women living with HIV, stigma, and the criminalization of HIV. The Seattle Lesbian writes that “this special report investigates the injustices that arise when a person’s HIV status becomes a legal challenge, with a focus on how women have been stigmatized and prosecuted under these laws.”

Great Expressions Employee Mistreated for HIV+ Status


Although the title “Great Expressions” Dental Centers may seem like a very inviting establishment, the unbelievably inhumane actions performed on  HIV+ employee James White by former colleagues speak to quite the contrary.

White, 26, was diagnosed with HIV after roughly 6 months as a Great Expressions employee in Detroit, Michigan. As soon as he was diagnosed, White wanted to assure his health by making various appointments and visits, thus forcing him to take several days off from his job. When confronted by his office manager, White shared his HIV+ status, thus starting a whirlwind of emotional and mental torture that was to ensue for the following seven months.

After White’s office manager became aware of his HIV+ status, he quickly spread word to Great Expressions’ Regional Director, who refused to acknowledge the difference between an HIV and AIDS diagnosis, and furthermore, spread the information about White’s status to the entire staff.

After months of being followed around with cans of Lysol, banned from touching doorknobs, and enduring endless taunts and criticisms that “degraded [him] as a person,” White was hospitalized with a diagnosis of post-traumatic stress disorder. He is currently fighting against the actions of Great Expressions in the court of law.

Want to make a difference in this case? You can sign this petition heralded by Change.org, make your voice heard, and ensure the future health and safety of James White, and many other HIV+ individuals who are exposed to this unwarranted, ridiculous behavior on a daily basis.

Information for this article was provided by Change.org and POZ Magazine.